"I can fight it!": A qualitative study of resilience in people with inflammatory bowel disease.
Dan Luo, Zheng Lin, Xing-Chen Shang and 1 others
PMID 31406881WHAT IT FOUND
Patients with inflammatory bowel disease described resilience as shaped by family, friends, work, culture, and technology.
They also changed their environment by hiding or sharing the diagnosis and coped through information, planning, and stress release.
Key findings
01The analysis produced four major themes and 13 subthemes from interviews with people living with inflammatory bowel disease.
02Family was the most important external support, providing emotional support, understanding, and companionship.
03Patients strengthened disease control by seeking information, planning ahead, and improving self-management.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study described experiences in hospitalized patients from two hospitals, so it may not apply to patients in other settings. Some participants recalled experiences over a long disease course, which may affect credibility. The study did not test whether resilience factors or nurse actions improve outcomes. The resilience framework used did not include all elements of Kumpfer's original framework.
Declared interests
The authors reported no conflicts of interest. The study was supported by a Nanjing Medical University philosophy and social science development grant.
The easy way to misread this
Do not read these themes as proof that family support, information seeking, or nurse education improves resilience or quality of life. This was a qualitative interview study of hospitalized patients, so it describes experiences rather than testing any intervention.