Healthcare Interventions to Support Informal Caregivers of People With Severe Mental Illnesses: A Scoping Review.
Marjolijn Heslinga, Marie Louise Luttik, Bouwina Esther Sportel and 2 others
PMID 41674215WHAT IT FOUND
Eleven interventions to support families of adults with depression, anxiety or personality disorders were mapped.
Several reported reduced caregiver stress or burden, but evidence was uneven and not checked for study quality. Ask caregivers what support they need.
Key findings
01The review mapped 11 interventions to support informal caregivers of adults with depression, anxiety or personality disorders other than borderline personality disorder.
02Interventions clustered around changing caregiver thoughts and behaviour, understanding the illness, and feeling supported.
03Several studies reported lower caregiver stress or burden, but the review did not assess study quality or identify the most effective intervention.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
This was a scoping review, not a review of effectiveness, and the authors did not assess the methodological quality of the included studies. Only 13 articles describing 11 interventions were found, so the evidence base is small for the diagnoses included. The review excluded psychotic disorders, bipolar disorder, borderline personality disorder, autism spectrum disorder, substance use disorders, children, dementia, pregnancy-related problems and postpartum problems, so it does not cover all severe mental illness. Outcomes and questionnaires varied widely, and most measurements were taken only once, so comparisons between interventions are difficult. Some studies reported no significant effects, including no change in caregiver burden, depression or anxiety, or no improvement from adding a social forum. Only English-language articles were included, and the authors note that an extended search of grey literature could add to the review. Most interventions were not integrated into daily care, so it is unclear how easily they fit into routine nursing or mental health service work.
Declared interests
The authors report no conflicts of interest and state that they have nothing to report.
The easy way to misread this
Do not read this as proof that any one caregiver intervention works best. The review did not assess study quality, the interventions were very different, and several outcomes were not significant, including caregiver burden, depression or anxiety in some studies.