Healthcare Awareness Profile Interview: Development of a new evidence-based brief clinical tool to assess awareness in people with dementia.
Catherine M Alexander, Anthony Martyr, Linda Clare
PMID 38630307WHAT IT FOUND
A brief awareness interview for people with mild-to-moderate dementia was feasible by phone or video, lasted about 11 min, and was generally acceptable.
It gives a profile of awareness across memory, daily tasks, social and emotional functioning and mobility, and is not yet validated.
Key findings
01The pilot awareness interview lasted about 11 min and was generally acceptable and easy to understand.
02Low awareness discrepancies were more common in the functional and socioemotional sections than in other sections, and only six participants showed reasonable awareness across all sections.
03The current HAPI awaits validation.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTs
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What it does not show
The study was a small pilot with 29 participant-informant dyads analysed, not a validation study. The current HAPI awaits validation. The sample had little cultural diversity, and socioeconomic status was not assessed. The interviews were done remotely during the coronavirus pandemic, when lockdown restrictions may have made usual functioning harder to describe, and the tool has not yet been administered face-to-face. The carer was sometimes in the same room, which may have influenced the person with dementia's responses. The MoCA-5 min was done after the interview, so two people were excluded only after completing the HAPI. The interview took about 11 min, and the paper says the time may still be too long for some settings. The medication item was not applicable for some participants, so discrepancy data were missing for three participants.
Declared interests
The paper states the work was supported by an Alzheimer's Society Clinical Training Fellowship for Catherine Alexander under grant number AS-CP-17-001.
The easy way to misread this
Do not treat the HAPI as a validated clinical test or as proof that assessing awareness improves care. The paper reports a pilot of feasibility and acceptability in 29 dyads, and says the current version awaits validation.