RNOtherJournal of renal care2024

Health literacy profiles in kidney transplanted patients: A cluster analysis.

Tone Karine Vidnes, Astrid Klopstad Wahl, Marie Hamilton Larsen and 3 others

PMID 39523862

WHAT IT FOUND

Kidney transplant recipients fell into four health literacy profiles. 47 patients had low scores in all nine areas and showed psychological distress.

All groups except the strongest had their lowest scores for appraising health information.

Key findings

0147 patients formed a cluster with lower scores than the average group in all nine health literacy domains and a mean Hopkins score of 2.1, indicating psychological distress.

0275 patients formed the largest cluster and scored below the total sample average in all nine domains, with the lowest domain score of 2.62 for appraising health information.

0332 patients formed the highest-scoring cluster, yet only 35.5% had attended kidney school before transplantation.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The analysis used baseline data only and did not follow patients or test health outcomes, so it cannot show that tailored support improves transplant care. The sample was from one transplant centre in Norway, and most patients who could not complete questionnaires in Norwegian were excluded. The final number of clusters was chosen by senior researchers, and no fixed rule governed how many participants are needed for cluster analysis. Recruitment occurred during the COVID-19 pandemic, when 37% of recipients had a living donor kidney, higher than normal. All health literacy, distress and health status measures were self-reported, and clinical variables were also self-reported. 241 patients were invited, 41 declined, and five were excluded before baseline questionnaires, so the analysed group was 195. All patients completed a satisfactory number of Health Literacy Questionnaire items, but only three had missing answers in the HSCL-5 and EQ-5D visual analogue scale questionnaires.

Declared interests

The authors declared no conflict of interest. Funding was from the South-Eastern Norway Regional Health Authority.

The easy way to misread this

Do not conclude that kidney school harmed health literacy. Cluster 1 had the highest kidney school attendance and the lowest scores, but attendance was optional, the data were collected once, and the study did not test whether kidney school affected the scores.

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