RNQualitativeJournal of family nursing2025

Gaining More Ease in Everyday Life as a Family With a Child With Intellectual Disability Through Family-Systemic Therapeutic Conversations: An Exploratory Single-Case Study.

Simone Pascale Wildhaber, Corina Sgier, Margrit Hilpertshauser and 1 others

PMID 41237297

WHAT IT FOUND

A mother of a child with intellectual disability described nurse-led family conversations as helping her talk through burdens, guilt and suffering.

Themes included more ease in everyday life, realistic health goals and accepting help, not proof of benefit.

Key findings

01The mother described gaining more ease by talking about and reflecting on her burdens and suffering.

02The burdens were not resolved, but became conscious and led to new perspectives.

03She wanted respite services but found organizing them stressful.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

It describes one family, so it cannot show what happens in most families of children with intellectual disability. Only the mother took part in the conversations, so the son, daughter, father and wider family were not heard directly. The counselor was one advanced practice nurse, so the findings may reflect that person's style and background. Only German-speaking families were included. The study reports themes and experience, not whether the conversations changed outcomes.

Declared interests

One author runs a private company in this field, but the paper says there was no financial connection between the company and the study. The authors received no financial support.

The easy way to misread this

Do not read this as evidence that family-systemic therapeutic conversations improve family functioning or reduce caregiver suffering. It is a single qualitative case of one mother's experience, and the paper says the burdens were not resolved and the findings may not transfer to other families.

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The study

Participants
One family; mother, 12-year-old son, 9-year-old daughter
Certainty of evidence
Very low

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Cite

Simone Pascale Wildhaber, Corina Sgier, Margrit Hilpertshauser, et al. Gaining More Ease in Everyday Life as a Family With a Child With Intellectual Disability Through Family-Systemic Therapeutic Conversations: An Exploratory Single-Case Study. Journal of family nursing. 2025.

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