Feeling responsible but unsupported: How relatives of out-of-hospital cardiac arrest survivors experience the transition from hospital to daily life - A focus group study.
Camilla Dichman, Mette Kirstine Wagner, Vicky L Joshi and 1 others
PMID 33638939WHAT IT FOUND
Relatives of cardiac arrest survivors described being left responsible but unsupported after discharge.
They struggled to locate help for cognitive changes, feeling abandoned by the hospital system and overwhelmed by managing daily life without professional guidance.
Key findings
01Relatives felt the hospital discharge was an abrupt break from professional care, leaving them alone to manage the survivor's new cognitive impairments.
02Communication with healthcare professionals focused on cardiac recovery, while relatives had to independently identify and seek support for cognitive issues.
03Support after discharge was difficult to locate, with relatives describing a lack of systematic help to manage the transition to daily life.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Participants were recruited from a rehabilitation course, meaning they may be more engaged and resourceful than the general population of relatives. The study relies on self-reported experiences and does not measure clinical outcomes or the effectiveness of support interventions. Recall time varied significantly among participants, ranging from less than four months to over ten years after the cardiac arrest.
Declared interests
The authors report no conflict of interest and no private funding.
The easy way to misread this
Do not interpret these findings as evidence that specific nursing interventions improve outcomes. This qualitative study describes relatives' experiences of poor support and communication gaps, but it does not test whether addressing these gaps changes patient or relative well-being.