RNQualitativeThe American journal of hospice & palliative care2023

Family Caregivers' Challenges in Cancer Pain Management for Patients Receiving Palliative Care.

Nai-Ching Chi, Lynn Nakad, Soojeong Han and 5 others

PMID 35503240

WHAT IT FOUND

Family caregivers of adults with cancer in palliative care described pain management as difficult when care teams gave conflicting information, medication education was unclear, and they feared addiction or could not track medication schedules.

Key findings

01Caregiver comments were grouped into communication and teamwork issues (43 segments from 17 caregivers), caregiver-related issues (23 segments from 13 caregivers), and patient-related issues (17 segments from 10 caregivers).

02Caregivers said communication problems and conflicting information from care teams interfered with their ability to manage pain.

03Caregivers reported fear that pain medication could cause addiction or overuse, and inadequate knowledge of medication skills as challenges.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The interview guide came from the original trial and focused more on caregiver communication with health teams than on pain specifically, so communication challenges may be overrepresented. The sample was mostly older, female, Caucasian, college-educated, and caring for spouses or parents, so it may not reflect other caregivers. Only caregivers reported the experiences, not patients or clinicians. This was a secondary analysis of existing interview data, not a new study designed to test pain-management interventions.

Declared interests

The original trial was funded by the National Institutes of Health and the National Cancer Institute. The authors declared no potential conflicts of interest.

The easy way to misread this

Do not read these themes as evidence that a communication or education intervention works. The paper analysed caregiver interviews and did not test effects on pain.

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