Factors Affecting the Quality of Life of Parents of Children With Spina Bifida: The Mediating Role of Family Resilience.
Kyua Kim, Hyeseon Yun, Hooyun Lee and 3 others
PMID 40377248WHAT IT FOUND
Parental quality of life was lower when parents had more depression or stress, had low income, or had children needing enemas.
Family resilience was linked to better quality of life and partly linked depression to quality of life.
Key findings
01Parents in low-income families reported higher depression and lower quality of life than parents in middle-income and high-income families.
02The model linked lower parental quality of life to child's need for enemas, parental stress, and parental depression, and linked higher parental quality of life to family resilience.
03Family resilience partly linked parental depression to parental quality of life.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Secondary analysis of first-year cohort data, so it could not show how parental quality of life changed over time. Participants were parents of children aged 4 to 12 years from one tertiary hospital in South Korea, so findings may not apply to parents of adolescents or to other countries. The sample was 162 and mostly mothers, which may limit precision and the extent to which fathers' experiences are represented. The authors noted that the small sample raised risks of statistical errors and model overfitting, and that they did not examine specific family resilience variables in detail. The study is observational and cross-sectional, so it cannot show that depression, resilience, income, enemas, or clean intermittent catheterization cause changes in parental quality of life.
Declared interests
The authors declared no conflicts of interest. Funding came from the National Research Foundation of Korea and the Brain Korea 21 FOUR Project at Yonsei University College of Nursing.
The easy way to misread this
Do not treat family resilience as a proven way to improve parental quality of life. The study measured variables at one time point and did not test an intervention, so it shows associations rather than a treatment effect.