Experiences Surrounding an Early-Stage Cognitive Diagnosis in Rural-Dwelling Older Adults.
Meghan K Mattos, Marci L Nilsen, Jennifer H Lingler
PMID 30036404WHAT IT FOUND
Older rural adults and care partners noticed memory changes, saw inconsistent evaluations and treatment, and often relied on care partners to arrange specialty cognitive evaluation.
Diagnosis brought relief and mixed life changes.
Key findings
01Seven of nine participants had seen another health care provider before the specialty evaluation, and dyads reported inconsistent evaluation and treatment.
02Only three of nine participants scheduled their own specialty evaluation; five care partners and one participant's sister scheduled it.
03After diagnosis, dyads reported relief and mixed life changes, including three participants stopping driving voluntarily, healthier habits, and withdrawal from community involvement.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
Read the rest of this summary
You get three full summaries a month, free, and we do not ask for a card. Search, the TL;DRs and your library stay unlimited either way.
What it does not show
The sample was small and purposively selected from people already attending a specialty research center, so it may not represent rural adults who do not seek evaluation. All participants and care partners were white, and the sample had relatively high education, limiting generalizability. Participants were highly motivated, willing to travel and undergo long evaluations, which may not be typical of rural-dwelling adults. Experiences were recalled retrospectively, and interviews did not probe pre and post visit events directly; some participants could not remember the specialty visit. The interview guide asked about the last specialty visit, but not why only some participants scheduled their own evaluation. Inclusion required a reliable care partner, adequate sensory acuity, more than 7 years of education, and capacity to consent, so people without a care partner or with lower function were not studied. One interview included an additional care partner, so dyad counts were not uniform.
Declared interests
Funding is listed as NIH extramural and non-U.S. government research support; authors declared no potential conflicts of interest.
The easy way to misread this
Do not read these themes as evidence that specialty evaluation improves cognitive outcomes. This was a qualitative study of a small, highly motivated sample with retrospective recall.