Experiences of persons with multiple sclerosis of a collaborative care programme: A qualitative study.
Firuzeh Payamani, Seyed Reza Borzou, Alireza Soltanian and 2 others
PMID 37390115WHAT IT FOUND
Patients with MS described nurse-patient collaborative care as starting with introduction and trust, then dialogue and joint goals, then agreed plans for nutrition, sleep, constipation, activity, fatigue and stress.
Key findings
01Participants experienced collaborative care as a continuous, systematic and logical process with three categories: initiation of communication, mutual interaction, and exchange of targeted behaviours.
02Formation of trust after introduction was described as crucial for the patient's involvement in the collaborative care plan.
03The exchange of targeted behaviours included implementation of strategies for nutrition, sleep and rest, constipation relief, physical activity and exercise, fatigue reduction, and stress management.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study used a small sample from one rehabilitation centre in Iran, so its findings may not transfer to other settings. Participants had relapsing-remitting MS, were aged 20 to 50 years, and had at least 6 months since diagnosis, so it says little about newly diagnosed, older, progressive, or other MS groups. This was a qualitative experience study. It did not test whether collaborative care improved symptoms, function, quality of life, or adherence. The collaborative care programme included multiple nurse-patient strategies, so the contribution of any single component cannot be separated. Findings may be influenced by cultural and community differences.
Declared interests
The authors declared no conflict of interest. The study was funded by Hamadan University of Medical Sciences.
The easy way to misread this
Do not read the reported changes in sleep, constipation, activity, fatigue or stress as proof that the collaborative care programme works. This study asked people with MS to describe their experience after the programme, and it did not compare outcomes with a control group.