RNQualitativeJournal of gerontological nursing2022

Experiences of Older Family Care Partners of Persons With Heart Failure 1 Year After the Onset of the COVID-19 Pandemic: A Qualitative Study.

Dawon Baik, Heather Coats, Christina Baker

PMID 36169290

WHAT IT FOUND

Older family caregivers of people with heart failure described less exercise, social isolation, and reduced access to care during COVID-19, which worsened mood and caregiving burden.

They coped by using phone or video calls, following precautions, and getting vaccinated.

Key findings

01Most caregivers said pandemic restrictions reduced physical activity and worsened mood.

02Less respite increased caregiving tasks and distress, and caregivers reported limited access to services for their own age-related health and their family member's health.

03Caregivers adapted by using phone, video, and text messaging more, and some said vaccination improved family contact.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

Only 13 caregivers were studied, all from one academic heart failure clinic, so these themes may not fit other communities, care settings, or patient groups. Most participants were female spouses and non-Hispanic White, so experiences of men, adult children, other caregivers, or other racial and ethnic groups may differ. This is a qualitative study, so it reports what caregivers said and did not test whether any intervention, digital tool, or vaccination improved health or caregiving. Participants had to read and speak English and were screened for cognitive impairment, so caregivers with dementia, language barriers, or cognitive impairment were not included. The interviews were conducted in early 2021 during initial vaccine rollout, so caregiver experiences and coping may have changed later in the pandemic.

The easy way to misread this

Do not read these themes as proof that caregiver support, digital health tools, or vaccination improve health outcomes. The study asked 13 caregivers what they experienced and used as coping strategies; it did not compare groups or test whether anything worked.

Read it on PubMed →