Experiences of informal caregivers of people with dementia with nursing care in acute hospitals: A descriptive mixed-methods study.
Annette Keuning-Plantinga, Petrie Roodbol, Barbara C van Munster and 1 others
PMID 34532873WHAT IT FOUND
Caregivers of people with dementia in Dutch acute hospitals rated nurses 6.4 out of 10.
Some were satisfied, but many reported gaps in supervision, person-centred activities, communication and discharge involvement, and felt pressured to take over nursing tasks.
Key findings
01Caregivers graded nurses 6.4 on a 1 to 10 scale for dementia-related nursing care.
02Almost half of respondents (n=59) were very satisfied that nurses took dementia into account, but around half reported insufficient supervision at mealtimes (n=67) and more than half reported inadequate wandering supervision (n=70).
03More than two-thirds (n=89) said they were always or often involved in care decisions; half (n=67) were satisfied with that involvement, and all participating caregivers said communication could be improved.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
Read the rest of this summary
You get three full summaries a month, free, and we do not ask for a card. Search, the TL;DRs and your library stay unlimited either way.
What it does not show
The sample was a convenience sample, and the hospital-care findings rest on 129 caregivers, while 396 completed the questionnaire. The questionnaire was not validated, and it did not cover communication and hospital environment well enough for full quantitative comparison. The qualitative part was small: six focus-group participants and five interviewees, and some interviews were emotional, which may have affected the accounts. Caregivers were not always present, and answers contained 3% to 19% 'I don't know', so some nurse behaviours may not have been observed. The hospital environment theme had no quantitative data because the analysis framework was added after the questionnaire. The data were collected before COVID-19 and in one country, so transferability is limited. There were no comparison groups or objective nursing records, so this describes caregiver perceptions rather than measured nursing performance.
Declared interests
The paper does not report funding or conflict-of-interest declarations; it does report collaboration with Alzheimer Nederland in recruitment, questionnaire development and the focus group.
The easy way to misread this
Do not conclude that nurses generally fail to provide person-centred care. These are self-selected caregiver reports from a convenience sample, with positive and negative accounts, and many 'I don't know' answers.