RNOtherJournal of advanced nursing2021

Experiences of informal caregivers of people with dementia with nursing care in acute hospitals: A descriptive mixed-methods study.

Annette Keuning-Plantinga, Petrie Roodbol, Barbara C van Munster and 1 others

PMID 34532873

WHAT IT FOUND

Caregivers of people with dementia in Dutch acute hospitals rated nurses 6.4 out of 10.

Some were satisfied, but many reported gaps in supervision, person-centred activities, communication and discharge involvement, and felt pressured to take over nursing tasks.

Key findings

01Caregivers graded nurses 6.4 on a 1 to 10 scale for dementia-related nursing care.

02Almost half of respondents (n=59) were very satisfied that nurses took dementia into account, but around half reported insufficient supervision at mealtimes (n=67) and more than half reported inadequate wandering supervision (n=70).

03More than two-thirds (n=89) said they were always or often involved in care decisions; half (n=67) were satisfied with that involvement, and all participating caregivers said communication could be improved.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The sample was a convenience sample, and the hospital-care findings rest on 129 caregivers, while 396 completed the questionnaire. The questionnaire was not validated, and it did not cover communication and hospital environment well enough for full quantitative comparison. The qualitative part was small: six focus-group participants and five interviewees, and some interviews were emotional, which may have affected the accounts. Caregivers were not always present, and answers contained 3% to 19% 'I don't know', so some nurse behaviours may not have been observed. The hospital environment theme had no quantitative data because the analysis framework was added after the questionnaire. The data were collected before COVID-19 and in one country, so transferability is limited. There were no comparison groups or objective nursing records, so this describes caregiver perceptions rather than measured nursing performance.

Declared interests

The paper does not report funding or conflict-of-interest declarations; it does report collaboration with Alzheimer Nederland in recruitment, questionnaire development and the focus group.

The easy way to misread this

Do not conclude that nurses generally fail to provide person-centred care. These are self-selected caregiver reports from a convenience sample, with positive and negative accounts, and many 'I don't know' answers.

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The study

Participants
396 caregivers completed the questionnaire; 129 had a relative with dementia admitted to an acute hospital in the past year and answered hospital-care items; six caregivers took part in a focus group and five in interviews
Certainty of evidence
Low

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Cite

Annette Keuning-Plantinga, Petrie Roodbol, Barbara C van Munster, et al. Experiences of informal caregivers of people with dementia with nursing care in acute hospitals: A descriptive mixed-methods study. Journal of advanced nursing. 2021.

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