PTOTPilotDisability and rehabilitation2025

Examining patient reported outcome measures for phantom limb pain: measurement use in a sample of Veterans with amputation.

Tonya Rich, Hannah Phelan, Amy Gravely and 7 others

PMID 38813752

WHAT IT FOUND

Phantom limb pain ratings did not line up strongly with pain interference in this pilot of 50 Veterans.

General pain ratings did, so phantom limb pain scores may miss how much pain affects daily life.

Key findings

01In the enrolled sample, 80% reported phantom limb pain and 76% reported residual limb pain; 36% rated phantom limb pain as severe.

02Phantom limb pain intensity ratings were only small or moderate in relation to pain interference measures, while general pain ratings were strong.

03The multi-item pain measures showed high internal consistency in this Veterans sample.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTs

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What it does not show

The sample was small and may have been underpowered to identify relationships among outcome measures. The study used a convenience cross-sectional design, so it describes associations at one time point. Participants were Veterans at one Midwest VA amputation center, so the findings may not apply to other amputation populations. Only 2 female Veterans and 8% of participants were from non-white backgrounds. The study did not collect current medications, reason for amputation, or additional comorbidities that could affect overall pain. The Phantom Phenomena Questionnaire had no specified timeframe, so ratings may reflect lifetime experience or a recent period. Pain interference measures often referred to the past 7 days, which may not capture infrequent but severe phantom limb pain episodes.

The easy way to misread this

Do not assume a high phantom limb pain rating means a patient's daily life is highly interfered with. In this pilot, phantom limb pain ratings were only small or moderate in relation to pain interference measures, while general pain ratings were stronger.

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