OTSLPQualitativeJournal of intellectual disability research : JIDR2026

Emphasising Learning in Health Promotion Targeting Individuals With Intellectual Disabilities.

Elin Fägerstam, Kristin Alfredsson Ågren, Maria Kvarnström and 3 others

PMID 41790110

WHAT IT FOUND

People with intellectual disabilities and those supporting them said three things matter: being helped to understand their health choices, being listened to in a way that fits them, and having activity built into the day.

Staff knowledge and service rules decide whether it happens.

Key findings

01Participants described health promotion as helping people with intellectual disabilities understand healthy living and the consequences of unhealthy choices, rather than imposing restrictions, but support persons said they struggled to balance how much support to give without taking the decision away from the person.

02All participant groups said people with intellectual disabilities need to be able to express themselves and be heard, and professionals named talking mats, social stories, visual support, sign-supported speech and motivational interviewing as ways of adapting communication to the individual.

03Significant others and healthcare and social services professionals described staff at group and service homes invoking the right to self-determination to justify not supporting people with intellectual disabilities despite obvious health problems, and attributed this to staff not knowing enough about healthy behaviour.

STILL TO COME

How it was doneWhat they foundWhat it means for OTsWhat it means for SLPs

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What it does not show

Only two of the 14 participants with intellectual disabilities were men, with one more identifying as non-binary, and all five significant others and all 11 professionals were women. The authors state this reduced the range of gender perspectives in the study. The authors state that no explicit questions about learning were asked in the workshops, so the paper's emphasis on learning as part of health promotion rests on what participants volunteered rather than on a topic the study set out to examine. The researchers did not collect information on how many people were invited and declined, or why, because they did not want to add to the workload of the staff helping with recruitment. It is therefore impossible to judge who is missing from the sample. People with intellectual disabilities were identified by contact persons within services rather than approaching the study directly. The authors say findings may not transfer to places where health and social services are funded and organised differently. This is a qualitative study of what people said in workshops. It did not compare anything or measure any outcome, so it cannot show whether any of the described strategies improves health.

Declared interests

The study was funded by the Swedish Research Council (grant 2022-06287), the Swedish Research Council for Health, Working Life and Welfare (Forte, grant 2024-02286) and the Sunnerdahl Handikappfond Foundation (grant F27/22). The authors declare no conflicts of interest.

The easy way to misread this

The title points at learning, but the authors state plainly that no questions about learning were asked in the workshops, so learning was never directly investigated. These are themes about what people said helps in everyday health promotion, not strategies that have been tested. Nothing here shows that any of them improves anyone's health.

Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →