Effect of empowerment-based interventions on self-efficacy and self-care capacity among patients with sickle cell disease: A randomized controlled trial.
Zohour Ibrahim Rashwan, Hasan Abdali Khalil, Leena Mohamed Khonji and 5 others
PMID 39990988WHAT IT FOUND
In adults with sickle cell disease, nurse-led group education, individual consultations, and follow-up raised self-efficacy and self-care capacity scores after one month versus routine clinic education.
Key findings
01Self-efficacy rose in the empowerment group from a median 30.0 to 37.0 on the 9-to-45 Sickle Cell Self-Efficacy Scale after one month; the control group did not change significantly.
02Self-care capacity improved in the empowerment group from a median 47.0 to 61.0 on the ASA-R after one month, versus 48.0 to 49.0 in controls; between-group difference P=0.003.
03The empowerment group received small-group education, individual 5A consultations, and follow-up, so the study cannot attribute the improvement to any single component.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Only adults from primary care settings in Bahrain were included, so results may not apply to patients in secondary care, those who cannot read or write, or people with mental illness or advanced complications. The paper describes only data collector and statistician blinding, not participant blinding, so expectation effects are possible. Follow-up was only one month, and outcomes were self-report scales, not pain crises, hospital admissions, or longer-term self-care. The empowerment package combined group education, individual 5A consultations, and follow-up, so the effect of any single component cannot be separated. There were withdrawals; 149 patients were assessed but 68 were analysed. The ASA-R was described as reliable and valid for a Spanish elderly population, not clearly for this sample.
Declared interests
The authors declared no conflict of interest.
The easy way to misread this
Do not conclude that the 5A consultation alone caused the improvement. The empowerment group also received small-group education and weekly follow-up, and outcomes were self-report scores after one month, not pain crises or hospital use.