RNSurveyJournal of wound, ostomy, and continence nursing : official publication of The Wound, Ostomy and Continence Nurses Society2026

Don't Lose Sleep Over It, Impact of Living With an Ostomy on Sleep Disruptions: Results From a US Survey and Multinational Ostomy Clinical Registry.

George Skountrianos, Renee Malandrino, Colleen Drolshagen and 1 others

PMID 41778657

WHAT IT FOUND

Ostomy patients commonly reported pouching-system-related sleep disruptions, often weekly or nightly and bothersome.

Ileostomy, peristomal skin problems, and recent ostomy were linked to more disruptions; many did not seek help.

Key findings

0147% of Sleep Survey participants reported ostomy pouching-system-related sleep disruptions; 75% of those had disruptions at least weekly and 31% had nightly disruptions.

02In the Sleep Survey, ileostomy was 1.3 times more likely than colostomy and 1.6 times more likely than urostomy to be associated with sleep disruptions, and compromised peristomal skin was 1.5 times more likely than intact skin.

03Most participants did not seek professional help for sleep disruptions: 41% took no action and 11% contacted a physician or nurse.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The Sleep Survey was voluntary, anonymous, and self-selected, so it may over-represent people who are motivated to report problems. The survey was not formally validated, and no validated sleep quality tool was used. The study was cross-sectional, so associations cannot show that ostomy type, skin problems, or pouching events caused sleep disruption. Missing data were not imputed, so sample sizes varied by question. The survey frequency question had a wording error: response options were not limited to the past 30 days. The Sleep Survey sample was US-based, and the registry sample was small, so findings may not apply broadly.

Declared interests

The supplied text does not report funding or author conflict-of-interest declarations. Sleep Survey participants were identified through industry-sponsored ostomy patient support programs, ostomy product supply distributors, and ostomy patient associations.

The easy way to misread this

Do not read the associations as proof that pouching-system problems cause sleep disruption or that a product change will fix it. This was a self-reported cross-sectional survey, so it can link ostomy features with reported sleep disruption but cannot show cause.

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The study

Participants
Sleep Survey: 5648 individuals; OSO registry: 206 participants
Certainty of evidence
Low

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George Skountrianos, Renee Malandrino, Colleen Drolshagen, et al. Don't Lose Sleep Over It, Impact of Living With an Ostomy on Sleep Disruptions: Results From a US Survey and Multinational Ostomy Clinical Registry. Journal of wound, ostomy, and continence nursing : official publication of The Wound, Ostomy and Continence Nurses Society. 2026.

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