Development of a web-based, theory-guided narrative intervention for women at elevated risk for breast cancer.
Mira L Katz, Leigha Senter, Paul L Reiter and 9 others
PMID 36333195WHAT IT FOUND
A web video series for women at elevated breast cancer risk was built with genetic counselors and patient input.
It explains testing, results and next steps, but its effect on care is not known until a trial finishes.
Key findings
01The intervention was made as web videos delivered through an electronic health record portal, to replace conventional pre-test genetic counseling for women at elevated breast cancer risk.
02Five women at elevated risk reviewed a draft video in a one-hour online focus group and found the genetic information understandable. The team changed wording about uncertain variants.
03The planned intervention includes an introductory video and six short videos, with downloadable transcripts for participants who are hard of hearing.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The paper reports intervention development, not trial results, so it cannot show whether the videos work. Only five women took part in the focus group, and most development participants were from a single geographic region. The advisory board and focus group may not represent all women at elevated breast cancer risk. The intervention is only available in English.
Declared interests
The authors declared no conflicts of interest.
The easy way to misread this
Do not read this as evidence that the videos improve genetic counseling or adherence. The trial is ongoing and this paper reports intervention development and focus group feedback only.