Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access During the Transition to Adulthood for Youth with ASD.
Julie Lounds Taylor, Florencia Pezzimenti, Meghan M Burke and 3 others
PMID 34232419WHAT IT FOUND
Parents of youth with ASD completed a 12-week advocacy training with high attendance and satisfaction across three states.
Most would recommend it. Online delivery was preferred by 58%, though in-person felt better for connecting with other parents.
Key findings
01Treatment fidelity was over 85% for nearly all sessions across study sites, and inter-rater agreement was 94%.
0284.6% of participants attended 75% or more of the sessions, with nearly 50% attending all 12 sessions.
03More than 90% of participants reported learning new information, being satisfied, and that they would recommend the program to other families. The lowest-rated items were concentration during sessions and connecting with other parents.
STILL TO COME
How it was doneWhat they found
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What it does not show
The sample was 82.4% White and over-represented for higher education levels, so the findings may not reflect the experience of families from under-represented groups or those with fewer resources. The program was delivered with coaching and technical support from a research team, so it is unclear whether the same fidelity and acceptability would hold in a fully community-run setting without that support. About one-third of participants did not complete the satisfaction survey, and because the survey was anonymous, the researchers cannot determine whether those who skipped it had a less positive experience. The in-person versus online comparison was unplanned, driven by COVID-19 restrictions, and based on only 20 participants who experienced both formats.
Declared interests
Funded by the National Institute of Mental Health, the Eunice Kennedy Shriver National Institute of Child Health and Human Development, and the National Center for Advancing Translational Sciences. No industry funding or conflicts of interest are declared.
The easy way to misread this
Do not read the high satisfaction and attendance as evidence that ASSIST improves service access or outcomes for youth with ASD. This paper reports only that the program was delivered with fidelity and that parents found it acceptable. The effectiveness results from the full randomized trial are not included here.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →