Development and validation of the information needs questionnaire for differentiated thyroid cancer patient with radioactive iodine therapy (INQ-DTC).
Jing Zhang, Limei Li, Dongling Liu and 6 others
PMID 34003590WHAT IT FOUND
Thyroid cancer patients after radioactive iodine had information needs in five areas: disease, examination and surgery, radioactive iodine therapy, home rehabilitation and psychosocial support.
The questionnaire was reliable in 230 patients, but it was not tested for improving care.
Key findings
01The final questionnaire had five information-need domains: disease, examination and operation, radioactive iodine therapy, home-based rehabilitation and psychosocial information.
02The total score showed satisfactory internal consistency, with Cronbach's alpha 0.945.
03In 30 patients reassessed after two weeks, the overall score had test-retest reliability of 0.984.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The authors said the sample size was insufficient and may have reduced the trustworthiness of the factor analysis. There was no existing gold-standard questionnaire for differentiated thyroid cancer information needs, so criterion validity was not tested. The study was done only in mainland China, in thyroid surgery and nuclear medicine departments, so its results may not apply to other settings. Ten of 240 patients who met criteria refused, leaving 230 collected; the paper reported 95.83% effective recovery. Some items with double factor loading were kept because the researchers judged them important for home-based rehabilitation. The reported evidence is about questionnaire consistency and structure, not about improved patient education or care.
Declared interests
The authors declared no conflicts of interest.
The easy way to misread this
Do not read the high reliability values as proof that the questionnaire improves care. It was developed and validated as a measurement tool, and the authors could not compare it with a gold standard because no appropriate existing scale was available.