Development and content validation of a survey assessing domains of sexual and reproductive health in adults with spina bifida.
Betsy Hopson, Ching Man Carmen Tong, Courtney Streur and 4 others
PMID 40096510WHAT IT FOUND
A new survey assessing sexual and reproductive health in adults with spina bifida achieved high expert agreement on its content.
It covers knowledge, practices, safety, abuse, and self-efficacy. It is not yet validated for reliability or effectiveness, but it provides a structured tool for clinicians.
Key findings
01The survey achieved a content validity index of 0.8 or higher for all 100 questions across five domains after three rounds of expert review.
02Cognitive interviews with five adults with spina bifida found no question had an issue frequency exceeding 20%, leading only to minor reordering and clarification.
03The survey includes branch logic to reduce respondent burden, meaning a single participant does not answer all 100 questions.
STILL TO COME
How it was doneWhat they found
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What it does not show
The survey was designed for adults with spina bifida and has not been tested for reliability or effectiveness in changing outcomes. It may not be suitable for individuals with low literacy or high caregiver dependence, as these factors impact independent completion. Sensitive topics may lead to reluctance to engage in clinical settings, potentially affecting response rates. The findings may not be generalizable to all adults with spina bifida due to the specific expert panel and small number of cognitive interview participants. Psychometric properties beyond content validity have not yet been evaluated.
Declared interests
The authors received no financial support for the research, authorship, or publication.
The easy way to misread this
Do not assume this survey is ready for routine clinical use or that it effectively improves health outcomes. It has only been tested for content validity by experts and clarity by five patients. Its reliability, responsiveness, and ability to reduce abuse or improve knowledge have not been established.