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Development and applicability of a dignity-centred palliative care programme for people with idiopathic pulmonary fibrosis: A qualitative-driven mixed methods study.

Yasuko Igai, Sarah E Porter

PMID 35726124

WHAT IT FOUND

In 12 people with IPF, a nurse-delivered dignity-centred palliative care programme did not significantly improve self-esteem, the main outcome.

Participants found it acceptable, and a respiratory symptom score improved.

Key findings

01The primary self-esteem outcome was null: median score changed from 28.0 to 30.0 (p = .19), with 8 participants increasing, 1 unchanged, and 3 decreasing.

02Only the respiratory quality-of-life symptoms subscale improved significantly (Z = -2.20, p = .03).

03The programme was rated acceptable (median 17, IQR 12.5-19.5), and the 9 participants who maintained or increased self-esteem described better understanding of IPF, changed coping and feeling supported.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

Only 12 participants completed the programme, and there was no control group, so changes cannot be separated from time, usual care, or the natural course of IPF. Purposive sampling and a high rate of acute exacerbations, deaths and dropouts during recruitment may have introduced selection bias. The same nurse delivered the intervention and evaluated it, which could have introduced bias. The programme lasted 4 to 8 weeks, which may be too brief for life review compared with programmes of at least 10 weeks. The session and programme satisfaction questionnaires were original and not psychometrically tested. All participants had anxiety and depression scores at or above 20 on the total scale, so the findings may not apply to people with lower distress. Participants were Japanese outpatients able to read and write Japanese and endure sessions, so results may not generalise to people with cognitive decline, inability to attend, or other settings.

Declared interests

The authors declared no conflicts of interest.

The easy way to misread this

Do not conclude that this programme improves self-esteem, anxiety or depression. The primary self-esteem outcome was not significant, and the study had no control group.

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