Desire for Patient-Centered HIV Care Among Inconsistently Engaged Racial and Ethnic Minority People Living With HIV.
Jessica Jaiswal, Marybec Griffin-Tomas, Stuart N Singer and 1 others
PMID 29454555WHAT IT FOUND
Low-income Black and Hispanic people with HIV who were inconsistently engaged in care valued providers who showed genuine concern and included them in medication decisions.
Feeling heard and respected was described as key to trusting their clinician and continuing antiretroviral therapy.
Key findings
01Participants identified two main qualities they wanted from HIV care providers: genuine concern and feeling heard, particularly when discussing treatment options.
02Feeling heard involved being included in decisions about antiretroviral therapy regimens, which participants linked to feeling respected and having agency.
03Participants described providers who showed genuine concern through actions like following up after hospital visits or acknowledging personal life circumstances.
STILL TO COME
What they foundWhat it means for RNs
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What it does not show
The study did not interview HIV care providers, so it only presents the patient perspective on what constitutes good care. Participants were recruited from a single hospital in New York City, limiting generalizability to rural or other urban settings with different resource levels. The sample was small (27 participants) and focused on people with low income and specific racial/ethnic backgrounds. Five interviews were shorter than average due to participant fatigue and hospitalization, potentially limiting the depth of data from the most acutely ill participants.
Declared interests
The authors report no real or perceived vested interests that relate to this article that could be construed as a conflict of interest.
The easy way to misread this
Do not interpret these findings as evidence that patient-centered communication improves clinical outcomes like viral suppression or retention in care. The study describes what patients valued and how they perceived their care; it did not measure whether these interactions led to better health results.