Designing and Validation of Health-Related Quality of Life Inventory for Family Caregivers of Hemodialysis Patients.
Seyedeh Azam Sajadi, Abbas Ebadi, Seyed Tayeb Moradian and 1 others
PMID 32309457WHAT IT FOUND
A questionnaire for family caregivers of hemodialysis patients asks about burden, conflict, fear and concern, and positive growth.
In Iranian caregivers it gave consistent scores over two weeks.
Key findings
01The final inventory has 34 items and five dimensions: patient care burden, conflict, positive perception of situations, self-actualization, and fear and concern.
02The total score was stable over two weeks in 30 family caregivers, and the minimal detectable change was 10.17 points on the 0 to 100 scale.
03Caregivers with inadequate income had significantly lower quality-of-life scores than those with adequate or moderate income.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The participants were selected by purposive, conventional and convenient sampling, not random selection, so the results may not represent all family caregivers of hemodialysis patients. The inventory was developed and tested in Iran, and the paper says it is intended to fit that socio-cultural context, so its use elsewhere needs checking. Confirmatory factor analysis was not done, so the five-factor structure needs testing in a new sample. The test-retest sample was 30 family caregivers, while factor analysis used 300. The study aimed to design and validate the inventory, not to test whether it improves caregiver quality of life.
Declared interests
The supplied text reports ethics approval but no funding or conflict-of-interest declaration.
The easy way to misread this
Do not read this as evidence that giving caregivers the inventory improves their quality of life. It is a questionnaire that was designed and checked, not a tested intervention.