Defining the core components of Family Navigation for autism spectrum disorder.
Sarabeth Broder-Fingert, Nicole A Stadnick, Emily Hickey and 3 others
PMID 31311287WHAT IT FOUND
Researchers defined 11 core components of Family Navigation for autism, grouped into training, navigator activities, and tools.
These components, drawn from four trials, provide a blueprint for replicating the service without assuming efficacy.
Key findings
01Eleven core components of Family Navigation were identified across four clinical trials, organized into three domains: Training and Supervision, Navigator Activities, and Navigator Tools.
02The components include initial training, ongoing supervision, linguistic and cultural brokering, face-to-face/phone/email encounters, barrier identification, use of a Navigator Workbook, care coordination, emotional support, a Navigator Checklist, and fidelity monitoring.
03One trial included a component for administering ASD-specific behavioral treatment, but this was excluded from the core definition because it did not appear in the other three trials.
STILL TO COME
How it was doneWhat they found
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What it does not show
The study focused only on Family Navigation for young children with ASD or risk of ASD, so these components may not apply to other conditions or age groups. The definition of core components is based on what was consistent across four specific trials, not on which components actually caused positive outcomes. The study did not test the effectiveness of the intervention or the individual components. One trial had a unique component (ASD Behavioral Treatment Administration) that was excluded, highlighting that adaptations may be necessary for different contexts.
Declared interests
All authors declared no conflicts of interest.
The easy way to misread this
Do not assume these 11 components are proven to improve patient outcomes. This study describes what the interventions looked like in four trials, but it does not report whether those interventions worked or which components were responsible for any effects.