Concerns of Parental HIV Disclosure in China.
Meiyan Sun, Wei-Ti Chen, Joyce P Yang and 7 others
PMID 32567340WHAT IT FOUND
Chinese parents living with HIV in nurse-led disclosure sessions feared stigma, wanted to tell children themselves, and often delayed or refused disclosure.
Some planned to hide the transmission route and ask children to keep the secret.
Key findings
01Four themes emerged: intention to disclose, approach to disclosure, indicators for disclosure, and fears about disclosure.
02Upon completion of the intervention, many parents still insisted they would never disclose their HIV status.
03Parents preferred to disclose to their children themselves, were concerned about discussing transmission routes, and would ask children to keep the secret.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Most participants were fathers, so mothers' views were underrepresented. The analysis used only transcripts from the intervention group, not the usual care group. The study took place in Shanghai, a resource-rich setting, and may not apply to other parts of China. Research nurses had different levels of experience, which could affect the counseling and the data. Children were not interviewed, so the paper reports parents' views only. This is qualitative work, so it describes concerns and decision-making, not whether disclosure or the intervention improved outcomes.
Declared interests
The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article. The article is listed as receiving extramural NIH research support.
The easy way to misread this
Do not read this as evidence that the disclosure-support intervention works or that disclosure improves outcomes. The paper analyzes parents' responses during the sessions and reports themes, not trial results.