OtherAmerican journal on intellectual and developmental disabilities2025

Comparing Indicators of Advocacy Ability and Service Access Between Latino and White Families of Transition-Aged Youth With Autism.

Meghan M Burke, Saury Ramos-Torres, Leann Smith DaWalt and 1 others

PMID 41145157

WHAT IT FOUND

Latino and white families of transition-aged youth with autism both reported low adult-service knowledge.

Latino families reported more unmet needs and higher family empowerment. Higher advocacy skills linked to more services only for white families.

Key findings

01Both groups reported low knowledge of adult disability services, and Latino families scored lower than white families.

02Latino families reported more unmet service needs than white families, while total services received did not differ.

03Higher perceived advocacy skills were associated with more services received for white families only.

STILL TO COME

How it was doneWhat they found

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What it does not show

The data are cross-sectional, so the study cannot show that advocacy skills caused service access. Families were recruited from advocacy programs and were already interested in adult disability services, so the results may not apply to families not seeking advocacy support. All participants were from one Midwestern state, and service systems differ across states. The two groups differed in education and income, which may account for some observed differences. The age ranges differed between programs, and the analyses only controlled for age, so age may still influence the comparisons. Half of Program A participants completed data collection during the COVID-19 pandemic, which may have affected service access.

Declared interests

The supplied article text does not include a conflict-of-interest declaration. The publication types note NIH extramural research support.

The easy way to misread this

Do not read the advocacy skill finding as proof that teaching advocacy will increase services. These were baseline comparisons before any intervention, and the association between perceived advocacy skills and more services was significant only for white families.

Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →


The study

Participants
94 parents (48 white English-speaking, 46 Latino Spanish-speaking)
Certainty of evidence
Low

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    Cite

    Meghan M Burke, Saury Ramos-Torres, Leann Smith DaWalt, et al. Comparing Indicators of Advocacy Ability and Service Access Between Latino and White Families of Transition-Aged Youth With Autism. American journal on intellectual and developmental disabilities. 2025.

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