Communication of pain by school-age children with cancer using a game-based symptom assessment app: A secondary analysis.
Katherine M Bernier Carney, Se-Hee Jung, Eli Iacob and 2 others
PMID 33813185WHAT IT FOUND
All 19 school-age children with cancer receiving chemotherapy reported pain at least once on an app.
Their free-text notes added details such as central line dressing discomfort, but 15 pain reports lacked severity and 13 lacked bother ratings.
Key findings
01All 19 children reported pain at least once, and they recorded 67 pain reports across 48 days.
02Children recorded pain in different ways: 16 as a general symptom, 13 with a location, and 9 as both.
03Eleven children wrote 32 pain-related free-text statements; the central line was cited in 9 statements, and the stomach or gastrointestinal tract in 8 statements.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study included only 19 children from one hospital, and it was a feasibility study, so it cannot show how common these pain patterns are in other pediatric oncology groups. The sample size was set for feasibility, not for pain outcomes. Only 13 children recorded app information for at least four days, and many pain reports were missing severity or bother details. The app did not require children to report pain attributes, which may have caused missing data and made some reports incomplete. Researchers could not verify that the enrolled child personally completed each daily entry. Children's prior pain history was not formally assessed, so acute and persistent pain could not be separated. No member checking was done, so the categories used to describe pain-related statements may not fully match what the children meant. The free-text questions were not designed to elicit pain, so pain statements captured there may not represent all pain experiences. Only children who could use English and complete study procedures were included. Some children may have had parent support in reading items, which could influence responses.
Declared interests
The authors declared no conflicts of interest.
The easy way to misread this
Do not read this as evidence that the app improves pain assessment or pain control. It describes 19 children's reports in a small single-site feasibility study, and the free-text questions were not designed to capture pain.