Codesigning a Neurocognitive Assessment Protocol for Hyperphagia: Perspectives From Stakeholders in Prader-Willi Syndrome.

Individuals with PWS were not included in the initial codesign, so the adaptations reflect caregiver and professional views rather than direct participant experience. The stakeholder sample was small and had no reported demographics, so it is unclear how representative the views were. The feasibility phase included 27 people with PWS and 27 comparison participants, which is too small to support general practice recommendations or treatment effects. Eye-tracking data quality was variable, and anatomical eye differences may affect calibration accuracy. Focus groups may have produced socially desirable responses or groupthink, and no post-completion feedback was collected from participants. The study did not test whether the adapted protocol improves clinical care or measures hyperphagia accurately.

The authors declared no conflicts of interest. The study was funded by the Foundation for Prader-Willi Research.

Do not read the high completion and fasting rates as proof that the adapted eye-tracking protocol measures hyperphagia or improves patient care. It tested feasibility in a small sample and did not evaluate treatment effects.