Capturing Potential Interventions for the Empowerment of Older People and Informal Caregivers in Transitional Care Decision-Making: A Qualitative Study Using Focus Groups.
Lotan Kraun, Kristel De Vliegher, Elise Keldermans and 2 others
PMID 39450976WHAT IT FOUND
Older people, informal caregivers and professionals proposed early clear information, advance planning, home visits or trial stays, person-centred conversations and caregiver support to help people decide about care transitions.
These are ideas, not tested outcomes.
Key findings
01Four themes emerged: clear and timely information, preparing people for what is to come, person-centredness, and professional and peer support for informal caregivers.
02Healthcare professionals proposed frequent conversations about future care, including using routine appointments or incidents such as falls.
03Participants proposed caregiver support through a care mediator, burden assessment and peer groups.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The pandemic and scheduling problems meant only seven of eight planned focus groups were held, and four of 44 confirmed participants did not attend. The missing group was for older people living at home, so input about moving from home was less represented than input about moving to nursing home settings. Most healthcare professionals were nurses, so ideas may reflect nursing perspectives more than other disciplines. Older people found it harder than caregivers and professionals to suggest clear interventions, so their views were sometimes inferred from expressed needs. Focus groups were separate by participant group, which may have prevented discussion of how perspectives interact. The study was done only in Flanders, Belgium, so the health system and cultural context may limit transfer to other settings.
Declared interests
The authors declared no conflicts of interest. The work was funded by H2020 Marie Skłodowska-Curie Actions.
The easy way to misread this
Do not read the four themes as evidence that information desks, home visits, trial stays or caregiver support improve empowerment or care transitions. The study only collected participants' ideas in focus groups and did not test any intervention.