Cancer patient satisfaction regarding the quality of information received: psychometric validity of EORTC QLQ-INFO25.
Michele Bezerra, Edvane Birelo Lopes De Domenico
PMID 38716910WHAT IT FOUND
Cancer patients in Brazil scored 73.97 on the information satisfaction scale, but written information, other services, places of care and self-help scored lower.
Nurses can use the questionnaire to find gaps.
Key findings
01The questionnaire showed consistent answers across items and stable overall scores when repeated.
02Patients' overall satisfaction with information received was 73.97%, but other services, different places of care, self-help and written information had lower approval means.
03Patients wanted more information about recurrence, survival, treatment results, home care, medication interactions and safety; some wanted less.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The sample was mostly highly educated and middle-income, so results may not apply to patients with less education or greater social vulnerability. Data collection was interrupted by the pandemic, and test-retest was done on only 50% of the sample. The study could not perform confirmatory factor analysis because some responses did not vary. Only patients with breast, prostate, lung or colorectal cancer at one hospital were included. Open-ended responses were few.
The easy way to misread this
Do not read the 73.97% overall satisfaction score as proof that information needs are met. Written information, other services, places of care and self-help information scored lower, and the sample was mostly highly educated.