'Building our own house' as an insider-only Community-Partnered Participatory Research Council: Co-creating a safe space for Autistic knowledge production.
Gemma L Williams, Rebecca Ellis, Willow Holloway, Selena Caemawr, Monique Craine, Kathryn Williams, Aimee Grant
PMID 38757637WHAT IT FOUND
This paper is not a clinical trial or a study of patient outcomes.
It is a self-reflective report by an Autistic research team describing how they created an accessible, insider-only community council for a health study. It contains no evidence about treatment effects or patient care.
What this paper is
This article is a reflexive account by a wholly Autistic research team describing how they established an insider-only community council for a reproductive health study. It reports on their own experiences of accessibility, safety, and collaboration during the first six planning meetings. It does not report patient outcomes, clinical interventions, or efficacy data, so there are no clinical findings here for therapists to apply to patient care.
The easy way to misread this
Do not read this as evidence that specific community-led interventions improve patient health outcomes or clinical practice. It reports only on the internal dynamics and accessibility strategies of a research team forming a council, not on the results of any treatment or service delivery.
Summarised by AI from the full paper, without a clinician reviewing it. Check it against the source before it changes what you do. Read it on PubMed →