Bridging Parental Perceptions and Experiences of Family-Centered Care in the Pediatric Intensive Care Unit: A Mixed-Methods Study.
Merve Azak, Naile Yörür, İrem Cafrı and 1 others
PMID 42578757WHAT IT FOUND
PICU parents rated family-centered care a median 81.0 on a 21 to 105 scale, but interviews showed support did not always mean shared decisions.
Nurses' encouragement, timely information, and family-friendly space shaped participation.
Key findings
01Parents' median total family-centered care score was 81.0, and higher scores indicated more positive perceptions.
02Parents linked nurses' supportive communication to reduced anxiety and greater trust, while negative communication made them hesitate to participate in care.
03Barriers named by parents included no family sinks or resting areas, one-parent visitation rules, and limited timely information.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The quantitative phase was done in one Turkish PICU with 50 parents, so the scores may not apply to units with different staffing, policies, or physical space. The study did not have enough power for group comparisons, and the authors labelled the inferential analyses exploratory. The respect subscale was less reliable in this sample, so respect-related findings should not be treated as firm. Parents reported their own perceptions, which can be affected by memory or wanting to give a positive account. The quantitative part was cross-sectional, so it cannot show how perceptions changed over time or after an intervention. Many subgroup comparisons were made, so some findings may have occurred by chance even with correction for post hoc tests. The interview researcher was a PICU nurse and research assistant, and the authors acknowledged this could influence data collection and interpretation.
Declared interests
The authors declared no conflicts of interest and reported nothing to disclose for funding.
The easy way to misread this
Do not read the median 81.0 score as evidence that shared decision-making was fully achieved. Parents also described unmet needs for partnership, and the respect subscale was less reliable in this sample.