Beyond translation: Transcreation of a clinicians' guide to structure discussions about health-related values with Latinx patients throughout cancer.
Judith E Nelson, Carlos J Gonzalez, Angelica Alvarado and 4 others
PMID 38104422WHAT IT FOUND
Spanish-speaking Latinx patients and families found a nurse-led cancer values guide needed examples and rewording to make dignity, quality-of-life, and end-of-life items understandable.
Revisions improved clarity, not tested effectiveness.
Key findings
01Adding 'facing cancer' to values questions helped some patients connect personal values to medical care.
02Some patients found the dignity question unclear, worrying it asked for private information or implied current care was inadequate.
03End-of-life items were mostly understood, but some patients preferred not to think about a crisis and left decisions to family.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
All participants were recruited in New York City, so findings may not apply to Latinx patients elsewhere. Dominican patients and women were overrepresented, and Latinx communities vary widely. The study tested guide wording and cultural relevance; it did not test whether the revised guide improves patient-centered care or communication. Clinician and site-leader interviews were ongoing and not reported. Rapid analysis was used under time and resource constraints, and a more traditional qualitative analysis is ongoing.
Declared interests
No funding or conflict-of-interest statement appears in the supplied text.
The easy way to misread this
Do not read the revised Spanish guide as evidence that nurse-led values discussions improve care. This study tested patients' and families' understanding and cultural fit, not outcomes in a trial.