Alpha Test of the Donor Conception Tool to Empower Parental Telling and Talking.
Patricia E Hershberger, Agatha M Gallo, Kirby Adlam and 6 others
PMID 35922017WHAT IT FOUND
Parents and clinicians rated the TELL Tool prototype as highly helpful for supporting disclosure about donor conception.
Feedback focused on improving navigation, clarifying medical terms, and adding content on family emotions and cultural diversity.
Key findings
01Participants rated 93.7% of viewed webpages as helpful or very helpful, with only 0.6% rated as not at all helpful.
02Usability feedback highlighted the need for concise, visible instructions and better navigation cues to prevent missing information.
03Clinicians and parents recommended adding content on parental emotions, cultural barriers, and diverse family structures to improve acceptability.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The sample was limited in racial and ethnic diversity, with most participants identifying as White non-Hispanic. The study involved a small sample of 16 participants, which limits the generalizability of the findings. Not all participants completed the quantitative rating form, though 88% did. This was an alpha test of a prototype; the tool's effectiveness in real-world clinical settings has not yet been tested.
Declared interests
The study was supported by the National Institute of Nursing Research (NINR) of the National Institutes of Health. No other conflicts of interest were reported.
The easy way to misread this
Do not interpret the high helpfulness ratings as evidence that the tool improves patient outcomes or clinical practice. This was a prototype evaluation (alpha test) with a small, non-diverse sample, not a randomized controlled trial of efficacy.