Advancing Knowledge Translation Through Cultural Adaptation of an Intervention for Latino Family Caregivers of Persons Living With Dementia Using Participatory Action Research.
Carole L White, Bianca Shieu, Kimberly S Peacock and 3 others
PMID 41948788WHAT IT FOUND
Latino family caregivers described learning dementia care by trial and error and lacking Spanish-language training.
Adaptation recommendations added dementia education, self-care, hospice concerns, and family participation to a caregiver training programme. It does not test whether the adapted programme works.
Key findings
01Caregivers and the advisory council reported a lack of Spanish-language, culturally relevant training, with caregivers describing they learned care tasks by trial and error.
02The adaptation recommendations added dementia education about misbeliefs, explicit self-care discussion, information on palliative and hospice care, and delivery changes for multiple family members.
03Caregivers described reluctance to use formal support because family care is a cultural duty and hospice or nursing home placement was feared.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Only 13 caregivers were interviewed and 5 served on the advisory council, so the findings may not represent all Latino family caregivers. Participants were recruited through community partners and advisory council referrals, and the authors note they may have been more confident and more able to access resources. The paper describes only information gathering and adaptation design; preliminary testing is reported elsewhere and refinement is ongoing, so it does not show that the adapted intervention works. Spanish translation of materials did not use forward and backward translation, although it was reviewed by a bilingual family caregiver. The study did not report outcomes for people with dementia or caregivers after the adapted intervention was used.
Declared interests
This work was funded by the RRF Foundation for Aging. The authors declared no conflicts of interest.
The easy way to misread this
Do not conclude that the adapted intervention improves caregiver skills or dementia care. This paper describes adaptation recommendations only; testing and refinement were not reported here.