Adaptive Challenges, Adaptive Work, and Adaptive Leadership Among Women Living With HIV in the Southern United States: Findings From a Qualitative Study.
Donald E Bailey, Courtney Caiola, Adaora A Adimora and 9 others
PMID 35500057WHAT IT FOUND
Women living with HIV described technical problems with getting and taking medication, emotional strain and disclosure fears, and active work to manage care, support family, and collaborate with providers.
Key findings
01Participants identified technical challenges around obtaining and taking medication and around receiving care.
02Participants identified adaptive challenges of affective difficulty, including depressed mood, and disclosure difficulty.
03Participants described adaptive work to manage health with their health care team and to stay engaged in care and adhere to ART.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The interviews captured a point-in-time set of experiences over 4 months, not how challenges change over time. Participants were only from the Southern United States, specifically a North Carolina WIHS site, so findings may not transfer to other regions or countries. Limited demographic information was collected, and the study did not report how long participants had lived with HIV, so trajectories are unclear. The interviewer was a White male and participants were primarily women of color, and the authors acknowledge a possible power differential that may have influenced responses. The sample was a convenience sample from one research cohort, and the study produced descriptive themes rather than tested interventions or clinical outcomes.
Declared interests
The supplied text does not include a conflicts-of-interest declaration. The publication types note NIH extramural research support.
The easy way to misread this
Do not read the described provider-patient collaboration as proof that it improves HIV outcomes. The study did not test an intervention or measure clinical results.