A Mixed-Methods Feasibility Study of Integrated Pediatric Complex Care: Experiences of Parents With Care and the Value of Parent Engagement in Research.

This was a feasibility pilot focused on experiences and research engagement, not an effectiveness trial. Only 17 parents were interviewed, and 5 of 17 were recruited from the ITCC clinic. 44 parents completed the initial questionnaire and 24 completed follow-up, so follow-up data were limited. The authors note that parents who took part may have been more engaged than parents who did not. Only 32 of 44 parents at initial assessment and 18 of 24 parents at follow-up had complete cost data. The clinic delivered several supports together, including tertiary team visits, local allied health services, and care coordination, so the contribution of any one part cannot be separated. Some questionnaire items did not apply to families' unique circumstances. The paper reported questionnaire means but did not give scale ranges, so the scores cannot be read as high or low.

This study was funded by a grant from the Hamilton Health Sciences Foundation. The authors declared no commercial or financial relationships that could be construed as a potential conflict of interest.

Do not read parents' positive reports as proof that the integrated clinic works. This was a small feasibility study of experiences, not an effectiveness trial, and the care model included multiple supports delivered together.