A determination of the quality of life of children and adolescents with type 1 diabetes and their parents.
Nurcan Özyazıcıoğlu, Elif Ünsal Avdal, Halil Sağlam
PMID 31406726WHAT IT FOUND
Children and adolescents with type 1 diabetes had total quality-of-life scores of 79.91 and 79.89 on a 0 to 100 scale, but affective and school scores were lower; adolescents with higher HbA1c had lower total scores.
Key findings
01On a 0 to 100 scale where higher means better quality of life, total PedsQL scores were 79.91 ± 13.60 for children and 79.89 ± 14.87 for adolescents; social function scores were 90.85 ± 13.29 for children and 91.77 ± 12.83 for adolescents, while affective function scores were 74.29 ± 20.96 for children and 74.05 ± 17.13 for adolescents, and school function scores were 74.52 ± 20.01 for children and 73.79 ± 18.07 for adolescents.
02In adolescents, HbA1c level had a statistically significant negative relationship with total PedsQL score (P < 0.05).
03The number of children in the family had a statistically significant negative relationship with PedsQL scores of children and parents (P < 0.05).
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
This was a single-centre cross-sectional survey, so it can show associations but not whether diabetes control caused lower quality of life or lower quality of life led to poorer control. Participants were children and adolescents with type 1 diabetes treated at one hospital in Turkey, and diagnosis had to be at least six months ago, so it does not speak to newly diagnosed families or other settings. Quality of life was measured by self-report and parent proxy-report, and parent totals were lower than child or adolescent totals, so agreement was not perfect. The study did not test any nursing education or quality-of-life intervention, so it cannot support effectiveness of the recommended actions.
The easy way to misread this
Do not read the higher HbA1c and lower quality-of-life scores in adolescents as proof that better glucose control will improve quality of life. This was a cross-sectional survey, so it only shows the two measures were related in this group.