OTQualitativeFrontiers in rehabilitation sciences2022

A Case Study of Co-production Within a Mental Health Recovery College Dementia Course: Perspectives of A Person With Dementia, Their Family Supporter and Mental Health Staff.

Juniper West, Linda Birt, Danielle Wilson and 2 others

PMID 36188994

WHAT IT FOUND

Four people involved in co-producing a dementia Recovery College course described it as positive, collaborative and empowering, including helping the person with dementia feel safer talking openly.

It reports experiences, not proof that the course works.

Key findings

01Interview data were organised into three overall areas: experiencing co-production as positive, creating a powerful experience-based learning environment, and helping confront dementia together.

02All four interviewees positively valued co-producing the course and described the working relationships as collaborative.

03Staff reported that it was tricky to balance the group's diverse needs and to maintain the presence and voice of the person with dementia over time.

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

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What it does not show

All data came from one course group in one mental health Trust, so the experiences may not apply to other services. Only four people were interviewed, including one person with dementia and one family supporter, so the range of views is narrow. Only two of four possible staff took part, and people with dementia who had not yet joined the co-production group were not included. The staff and lead author were involved in person-centred dementia care learning, so they may have overestimated the positive effects of the work. The study reports interview themes, not measured effects on dementia care, patient outcomes, or service quality.

Declared interests

The paper states that the work was funded by the National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care East of England, recommissioned as the NIHR Applied Research Collaboration East of England. A later funding line also names the National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care Yorkshire and Humber. The authors declared no commercial or financial conflicts of interest.

The easy way to misread this

Do not conclude that co-producing a dementia course improves care or reduces stigma. The paper reports positive experiences from four interviews in one group, not measured clinical outcomes.

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